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RE: PCOS - 4/25/2008 11:35:34 AM
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daughter_of_faith
Posts: 1152
Joined: 1/10/2008
From: Great Plains, Kansas
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quote:
Did he say why he thought this was? Just because your cysts have been removed does not mean that they won't come back...in fact it's likely that they will if your PCOS isn't being treated properly.
That's my fear about all of this. All of the research I have done suggests that the cysts continue to form unless the woman undergoes treatment (whether the treatment is a supplement--ie: cinnamon, or medication--ie:Metformin, BC). We're moving in July; therefore, I'm somewhat apprehensive about switching doctors at this point (now that I've found one that somewhat listens).
I believe the doctor wants us to wait to give the uterine lining time to build back up as well as healing time. At least that's what it sounded like. This (building up lining) I don't really understand--the healing...yes.
I just don't think my doctor knows that much about PCOS in all honesty. How would I go about finding a doc that DOES know? I do have GREAT health insurance, but it somewhat limits which doctors I can see.
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RE: PCOS - 4/25/2008 11:41:03 AM
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Mrs.Wifey
Posts: 5092
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From: The Gorgeous plains of Colorado
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Ask or check the listings at soulcyster.net, it's an entire forum dedicated to PCOS. Or you could check you insurance guide/provider directory and see if you can electively choose to see a Reproductive Endo. or if you need a referral.
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Ryanne
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RE: PCOS - 4/25/2008 11:47:32 AM
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daughter_of_faith
Posts: 1152
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From: Great Plains, Kansas
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Well, I took matters into my hands by calling the OBGYN. I guess I could always do that with the RE....just not sure what insurance would think of that!!! My regular doctor's clinic told me they would have had to refer me to the OBGYN anyways (they're all part of the same health clinics). There's that provider directory....
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RE: PCOS - 4/25/2008 11:49:59 AM
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clag4christ
Posts: 2911
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From: We just moved to the big state of Texas!
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quote:
ORIGINAL: daughter_of_faith
Well, I took matters into my hands by calling the OBGYN. I guess I could always do that with the RE....just not sure what insurance would think of that!!! My regular doctor's clinic told me they would have had to refer me to the OBGYN anyways (they're all part of the same health clinics). There's that provider directory....
Just call your insurance co. up and ask if you need referrals for specialists, such as a reproductive endocrinologist. If not then just look up in your provider directory for one and call and make an appt. for treatment of PCOS/irregular cycles.
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<-----My fabulous Joel & me in Scotland
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RE: PCOS - 4/25/2008 11:56:04 AM
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daughter_of_faith
Posts: 1152
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There isn't one listed in the directory. Going to their online directory now. I guess I should have started there as my current OBGYN isn't even listed in the directory....
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RE: PCOS - 4/25/2008 12:12:12 PM
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daughter_of_faith
Posts: 1152
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From: Great Plains, Kansas
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Okay, I got distracted on soulcyster.com & found UC Davis in Sacramento (that's a few hours away from us, give or take). What do you think???
Not sure if insurance would cover for us to go there (that's another matter entirely). It would be worth a shot to try some of the things mentioned though! (I like walnuts...somewhat).....
Edited to fix link!!
< Message edited by daughter_of_faith -- 4/25/2008 12:19:28 PM >
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RE: PCOS - 4/25/2008 12:35:22 PM
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daughter_of_faith
Posts: 1152
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From: Great Plains, Kansas
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quote:
ORIGINAL: daughter_of_faith
There isn't one listed in the directory. Going to their online directory now. I guess I should have started there as my current OBGYN isn't even listed in the directory....
Hmmm....no reproductive endocrinologists within 250 miles that are covered by my insurance. There are regular endocrinologists in "town". I did a search on endocrinology and metabolism doctors too & I'm not seeing any of those. What a bummer!!!
Would a regular endo know about PCOS and be able to assist with reproductive needs?
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RE: PCOS - 4/25/2008 1:34:26 PM
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Mrs.Wifey
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From: The Gorgeous plains of Colorado
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A good one would. My former Endo(and lots of research) is what got me on Cinnamon and LC diet w/ exercise. Your other option is to see if there is a PCOS friendly OB/GYN listed on SoulCyster.
ETA- Because PCOS is typically pretty easy to treat, I don't think I would go so far as to drive a couple hours just for treatment until I had exhausted every option in the local area.
< Message edited by Mrs.Wifey -- 4/25/2008 1:40:46 PM >
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Ryanne
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RE: PCOS - 4/25/2008 4:29:19 PM
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daughter_of_faith
Posts: 1152
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From: Great Plains, Kansas
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Thanks, Ryanne. I'll have to check with one of the local endocrinologists. Probably will have to have a referral to see him/her as they are considered a specialist. I'll ask my OBGYN at my next appointment (May 6th).
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RE: PCOS - 5/10/2008 12:46:33 PM
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DustyLady
Posts: 84
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From: Ohio
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I'm jumping into a very long thread here, so please forgive me if I repeat things that have already been said.
I have never had a "normal" period in my life. When I was a teenager, I used to have horrible pain and weakness, and my family always accused me of being overly dramatic. I remember going to doctors a couple of times, once getting high when a doctor gave me water pills, and once passing out when a doctor gave me estrogen. (I've since found out that it would be life-threatening for me to take any kind of estrogen-producing product.) When I was in my mid-20s, I went through a spell when I didn't have a period for 6 months, then I didn't stop for 6 months. My endocrinologist told me at that time that I had polycystic ovaries, but didn't say anything about the syndrome. I'm not sure if they knew about it back then.
When I was in my late 30s, I saw a woman interviewed on the local news who had the syndrome. As she ran through her list of symptoms, I realized that I had almost every one of them. I asked my endocrinologist if I had the syndrome, and he said I did. About five years ago, I moved and started going to a new endo who diagnosed me with diabetes and put me on Metformin, although the only time my blood sugar has read high was when a doctor injected steroids into an arthritic knee.
Another thing that my new endo told me was that I now had metabolic syndrome -- PCOS is a part of that picture, they're not quite the same thing. This makes sense, because almost every system of my body is out of whack, or has been at one time or another. Right now, about the only things that aren't wonky are my cholesterol and thyroid. There are a tremendous amount of medications that I can't take, and I've had the strangest reactions to any attempt to lose weight. I had my stomach stapled 15 years or so ago, and didn't lose weight.
Not being able to have children hasn't been an issue for me until recently. I was single until I was 45, and when my husband and I got married almost 5 years ago we decided that we weren't interested in kids. But then perimenopause hit, along with a serious nesting urge. So, my husband made a suggestion that has me wondering. He said something about farming my eggs and his sperm, and having a surrogate mother carry our child. Does anyone know if that kind of thing is possible for those of us with the syndrome?
Another thing that has me wondering. Has anyone heard about a genetic component to the syndrome? I have seen research to show that it is an auto-immune disorder. My grandmother had rheumatoid arthritis, and my mother has Crohn's disease, both of which are also auto-immune disorders. Makes me wonder.
Dusty
_____________________________
"The thing I hate about an argument is that it always interrupts a discussion." -- G.K. Chesterton
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RE: PCOS - 5/10/2008 5:07:47 PM
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futuremartyr
Posts: 138
Joined: 4/4/2008
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quote:
ORIGINAL: Miss Giggles
I don't think I have PCOS but I have symptoms of Insulin Resistance which causes PCOS.
You have to work with a doctor, preferably a reproductive endocrinologist. You have a very high chance of developing type II diabetes. In addition you have to be monitored for other metabolic issues such as cholesterol and high blood pressure.
Not all agree IR causes PCOS, some believe PCOS is one of the causes of insulin resistance. You can have just one of the symptoms of PCOS and still have it. However it is possible to have insulin resistance and not have PCOS.
I am not infertile nor do I have irregular periods anymore, but I used. Yet I still have PCOS and IR.
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RE: PCOS - 5/10/2008 5:25:06 PM
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futuremartyr
Posts: 138
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quote:
ORIGINAL: SweetLittleErin
Well, I found out today that I am considered in this group.
I went off the pill in April, had two normal cycles then stopped. I gained alot of weight but I assumed it was because in Feb I broke my foot and was on crutches until the first of April (actually the last pill and the day I started walking were the same). I assumed the weight gain was due to the fact I had to stop the gym and eat my husbands "cooking" (aka: frozen pizza and taco bell). But then my periods stopped. My doctor at first treated me with one round of Provera and Clomid. That did nothing. I start Metaformin today.
How are you doing since starting treatment on metaphorim?
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RE: PCOS - 5/10/2008 5:55:56 PM
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futuremartyr
Posts: 138
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quote:
ORIGINAL: Mrs.Wifey
quote:
I was reading though that there is no test for PCOS just a list of symptoms that says yes or no.
There are tests that can point to PCOS, just nothing definite, alot of them have to be done on certain cycle days(3 and 21). I have PCOS and was diagnosed about 4 years ago after having several ruptured cysts. I have regular periods and am thin but have FSH and LH levels in a 3:1 ratio which is a HUGE PCOS indicator as well as a myriad of other symptoms including insulin resistance.
When we decided it was ok to get pregnant I went on a low-carb(south beach) diet, exercised and starting taking a cinnamon supplement. I really think that is what got me pregnant, but I was also fresh off BCP. I ovulate regularly for about 6 months after stopping bcp so I think I'll try that again next time we ttc.
Definitely get in to see an RE, but a very aggressive OB/GYN can also do the right tests if they know enough about PCOS and infertility.
I had a doctor who refused to give me the proper glucose test, and the one she gave me was normal. I changed my diet myself and went on suppliments.
Here is a great resource for info and suppliments on PCOS
http://www.ovarian-cysts-pcos.com/
I was diagnosed 5 years ago by a specialist , also after having several ruptured painful cysts. I didn't take the diagnose seriously but have educated myself within the last year. I have changed my diet, I also take d-Pinotol, carnitine, and fish oil. I am also on a low carb, diabetic diet, and I weight train 5 days a week. I usually have to take OTC pain relievers while I am ovulating, but not every month. I have 28 day cycles some months, I also have endometreosis and of course Insulinh resistance.
Most gynos are not educated about PCOS and it's a shame. But we always have specialist.
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RE: PCOS - 5/10/2008 5:58:59 PM
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futuremartyr
Posts: 138
Joined: 4/4/2008
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quote:
ORIGINAL: SweetLittleErin
Okay, lets do a LC accountability thing right here. I really dont want to go out into the "big world" to Health and Fitness, I'd forget about it and then it wouldnt do me any good.
Today:
B'fast: Not so good..I wasnt on my low carb realization yet
*Rice Krispies with 2%milk Net Carbs: 28.9 (cereal) Milk: 11.4
* Hot Cocoa (no excuses here!) Net Carbs: 10
Lunch:
* Vegetable Beef Soup Net Carbs: abt 10
Dinner:
*Crockpot "roasted" chicken Net Carbs: 0
* Green Beans Net Carbs: 3.6
Not sure what else yet. It was going to be Au Gratin Potatoes (hubby may still get those).
you should to eat 6 times a day. Rice crispies is a big no no, try plain cheerios or oatmeal. I tend to stay away from cereals with sugar higher than 10 grams per serving. Augratin is fine if you use sweet potatoes, I even make them roasted in the oven with garlic and red peppers, don't knock until you try it. complex carbs are good, so no need to do low carbs, just stay away from bad carbs.
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RE: PCOS - 5/10/2008 6:00:15 PM
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futuremartyr
Posts: 138
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quote:
ORIGINAL: clag4christ
Also, make sure that you are getting enough carbs. If you get too few, you'll feel sick and sluggish, the same as if you eat too many.
Shoot for 30 g of carbs per meal and 15 for snack. Also, you should not be eating meals closer than 2 hours apart. That will give your body time to process and digest the carbs from the previous meal.
You can also find breads, whole grain, etc., and pastas, with a high fiber content...that will help as well. You can subtract fiber content from carb content in your calculations. If you want you can get fiber pills or a fiber drink to add to your diet.
Cereals are hard for people with insulin resistance. I find that the best one for me is cheerios...the vanilla yogurt ones are pretty good. You can have 1/2C as a serving with milk and be good to go for carbs. You could also add some cheese, cottage or whatever, to your breakfast to balance out the carbs as well.
It really helps if you pay attention to the labels on foods so that you'll know what a serving size is and what the carb content is for it.
Blessings,
Kim
Veggies are high in good carbs..
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RE: PCOS - 5/10/2008 6:01:39 PM
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futuremartyr
Posts: 138
Joined: 4/4/2008
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quote:
ORIGINAL: Mrs.Wifey
Here are the definitions of which type is which-
quote:
1. traditional PCOS -- anovulatory, increased androgens, no insulin resistance
2. endocrine syndrome X -- anovulatory, increased androgens, insulin resistance or type 2 diabetes
3. non-traditional PCOS --anovulatory, normal androgens, obese, insulin resistant or type 2 diabetes
4. non-traditional PCOS -- ovulatory, increased androgens, mild insulin resistance
5. idiopathic hirsutism -- ovulatory, increased androgens, no insulin resistance
What exactly are you trying to determine?
Metformin will most likely help you get pregnant even if you are not IR... I am the closest to type 4.
I am non traditional PCOS
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RE: PCOS - 5/10/2008 6:04:41 PM
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futuremartyr
Posts: 138
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quote:
ORIGINAL: Jess77
One thing I am curious about though with all of you ladies... do you find yourselves feeling less "girly" than you think is normal when your symptoms are not under control?
I do
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RE: PCOS - 5/10/2008 7:40:12 PM
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DustyLady
Posts: 84
Joined: 5/3/2008
From: Ohio
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quote:
ORIGINAL: Mrs.Wifey
Here are the definitions of which type is which-
quote:
1. traditional PCOS -- anovulatory, increased androgens, no insulin resistance
2. endocrine syndrome X -- anovulatory, increased androgens, insulin resistance or type 2 diabetes
3. non-traditional PCOS --anovulatory, normal androgens, obese, insulin resistant or type 2 diabetes
4. non-traditional PCOS -- ovulatory, increased androgens, mild insulin resistance
5. idiopathic hirsutism -- ovulatory, increased androgens, no insulin resistance
I don't really fit in with any of these types.
Dusty
_____________________________
"The thing I hate about an argument is that it always interrupts a discussion." -- G.K. Chesterton
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RE: PCOS - 5/10/2008 7:49:46 PM
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Mrs.Wifey
Posts: 5092
Joined: 4/12/2005
From: The Gorgeous plains of Colorado
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quote:
Another thing that has me wondering. Has anyone heard about a genetic component to the syndrome? I have seen research to show that it is an auto-immune disorder. My grandmother had rheumatoid arthritis, and my mother has Crohn's disease, both of which are also auto-immune disorders. Makes me wonder.
It's been genetic in my family, but we all have PCOS.
If you don't fit the 5 types of PCOS, what are your symptoms of those listed in that chart?
Futuremartyr, it is sort of easier to read posts if you quote them all in one long post instead of doing a bunch of short posts.
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Ryanne
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RE: PCOS - 5/11/2008 7:52:59 AM
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DustyLady
Posts: 84
Joined: 5/3/2008
From: Ohio
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Well, I haven't seen the list of symptoms posted here, as I got into this discussion only a day or so ago. But here are some of the things that I have associated with PCOS, since I discovered I had it (about 10 years ago):
Inconsistent ovulation -- there are times when I do, and times when I don't
Extremely irregular periods (I've never bothered to keep a calendar, from the time I first started having my periods, because they were so erratic)
Central obesity
High blood pressure
Dark patches on under-arms (my first endocrinologist said this was one of the main symptoms that told him I had PCOS)
Formerly had high cholesterol, but not now
Had one thyroid scan that showed I was subclinical hyperthyroid, but every test since then has been fine
Never tried to get pregnant, so don't know if I could conceive or not, but my endo told me it would be highly unlikely
Acne -- very severe
Skin tags -- very severe
Frequent cysts -- those vaginal ultrasound tests are fun
Oily skin
Dandruff
Type 2 diabetes, although I have doubts about this
Sleep apnea
About the only symptoms I don't have is hirsutism and male-pattern hair loss. What makes me different from the types listed is that I don't have consistent anovulation.
Dusty
_____________________________
"The thing I hate about an argument is that it always interrupts a discussion." -- G.K. Chesterton
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RE: PCOS - 5/11/2008 8:04:03 AM
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DustyLady
Posts: 84
Joined: 5/3/2008
From: Ohio
Status: offline
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I previously posted that I had read PCOS was an auto-immune disorder. It's been a few years since I read that, so I was doing some research this morning, and found several websites that stated an auto-immune disorder CAN be one of the causes for PCOS. Here's one of them:
http://www.herplace.com/hormone-info/pcos.htm
I know there is evidence that diabetes, or insulin resistance, is related to auto-immune problems.
Dusty
_____________________________
"The thing I hate about an argument is that it always interrupts a discussion." -- G.K. Chesterton
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